ADVOCACY MANAGER (FIXED TERM)
PERIOD: 6 Months Fixed Term
SALARY: Competitive
HOURS: 5 days per week
STARTING DATE: March **Apply on the website**
HOLIDAYS: **Apply on the website** days per annum
REPORTING TO: Chief Executive
ABOUT FIGHTING BLINDNESS
Fighting Blindness is the national vision research charity, having
invested over ?**Apply on the website** million in more than **Apply
on the website** research projects since its inception in **Apply on
the website**. The organisation provides professional counselling and
therapeutic services for individuals and families living with vision
impairment. It advocates for equity of access to timely and
appropriate diagnosis, healthcare, therapies and support services and,
through education and information provision, works to empower the
**Apply on the website**,**Apply on the website** children and adults
in Ireland who are blind or visually impaired.
JOB PURPOSE
The role is responsible for implementing the organisation?s advocacy
strategy which is focused on medical research and the development and
access of new therapeutics; this will involve developing and
delivering advocacy campaigns as well as building and maintaining
relationships with key stakeholders such as elected representatives,
Government departments, statutory bodies, medical professionals,
industry and NGOs. The ideal candidate will have in-depth experience
of advocacy strategy and campaign management in the Irish healthcare
and research context. There will also be opportunities to support
advocacy initiatives where appropriate within the sight loss sector.
They will have an interest in the charity sector and will want to use
their skills to influence change.
ROLE AND RESPONSIBILITIES
* Work with multi-stakeholder groups in the areas of rare diseases
and vision at a national and international level, including on project
teams for specific relevant projects
* Represent Fighting Blindness at national and international level
on relevant boards and committees, conferences and events as
appropriate
* Work with all relevant stakeholders in medicines regulations and
reimbursement process to ensure access to therapies for people
affected by vision loss
* Point of contact for patient and public queries relating to
services, supports, policy, access and other relevant matters
* Manage and further develop VIP Network for Public and Patient
Involvement (PPI)
* Support people to participate in Public and Patient Involvement
(PPI) activities
* Management and development of Fighting Blindness Membership
Programme
* Act as a point of contact for internal and external enquiries on
specific policy areas
* Respond to consultations on behalf of the organisation in line
with strategic objectives
* Regular contributions to all communications channels - website,
newsletters and social media
QUALIFICATIONS AND SKILLS
* Relevant 3rd level qualification in a related field essential
* Minimum three years? relevant experience
* Experience in advocacy and lobbying essential
* Experience in the voluntary sector an advantage but not essential
* Knowledge of public health policy and policy-making processes
* Knowledge of medicines regulation and reimbursement processes
* Ability to work on own initiative, consult where appropriate and
work within a team
* Ability to work under pressure, manage competing priorities and
meet deadlines
* Excellent written and verbal communication skills, and
presentation skills.
* Ability to think creatively, problem solve and work under pressure
to a high standard
* Self-motivated with a high level of organisational ability,
accuracy and attention to detail
All employees are currently working remotely due to Government
pandemic restriction advice. Position usually based at Fighting
Blindness office, 7 Ely Place, Dublin 2, with occasional national and
European travel as required. Interested candidates should submit a
copy of their curriculum vitae and cover letter to Anna Moran at
**Apply on the website**.
CLOSING DATE: **APPLY ON THE WEBSITE** FEBRUARY **APPLY ON THE
WEBSITE**
_FIGHTING BLINDNESS IS AN EQUAL OPPORTUNITIES EMPLOYER._
We need : English (Good)
Type: Permanent
Payment:
Category: Health
